Yesterday I did something I’ve never done before — I attended the Connecticut Cactus and Succulent Society Annual Show and Sale. It’s the society’s 37th year of running the show/sale — who knew?
Apparently many, many people. When my friend and I made plans to attend, we decided leaving at 8:55am would give us plenty of time to get Bristol before the doors opened at 10:00am. The Society promised a free plant to the first 50 families each day and we felt confident we would be one of the first in line.
We arrived shortly after 10am to a parking lot jam-packed with cars. A line of people spilled out the doors of the Bristol Senior Center. People exited the doors with plants already in their hands or clustered in a box.
Turns out we had NO IDEA what we were getting into. I expected maybe 10 people would be there and maybe a few tables with plants.
Wall-to-wall plants and so many people that I ended up trapped in a corner at one point and couldn’t get out for over three minutes. Thank goodness almost everyone was wearing a mask! I haven’t been in a crowd like that since before the pandemic. Add that to my high levels of introversion and I was ready to go 1.5 hours later.
Thankfully, I had Annie waiting for me when I got back to Norfolk since I’m taking care of her for the week. We played multiple rounds of fetch.
Taken from earlier in the week; yesterday was too soggy to take a photo.
I learned the secret to fetch with Annie is to always have 2 or more balls ready to throw. I also learned that when Annie gets tired of running, she trots towards the woods with her ball and buries it in the leaves only to dig it up and bury again.
After about two hours of playing (and resting), I left Annie home while I went to the Norfolk Library to attend a Celebration of Ukrainian Song and Dance. It was again a large crowd and the dance company had 14 dancers total. All the dances were lively with clapping, stomping, twirling, and jumping.
I enjoyed myself; however, by the end of the hour I again felt all my energy had drained. Thank goodness (also again) that I had Annie waiting for me at home. The rain had finally stopped and we headed out for a walk.
The Barbour Woods served as the perfect antidote to the crowds, noise, and overwhelm from earlier in the day. I didn’t even mind when a gentle rain fell from the sky. On the contrary, I lifted my head to the tree tops and let the drops splash my face. I felt refreshed and renewed.
When the rain stopped a few minutes later I whispered, “Come back.”
The rain didn’t come back, but Annie and I kept walking. Quietness surrounded me, except for the sloshing of my boots through the mud and leaves. With every step I took, I became more at ease until finally a sense of peace and joy had replaced the overwhelm from earlier.
Being with Annie in the woods was exactly what I needed it to be.
Could we please stop with daylight savings time? Forcing me into unnecessary sleep disruptions seems cruel. I have enough sleep struggles at the moment.
I am no longer cautiously optimistic my sleep medicine is working. I know it is. I’m finally getting into deep sleep. But it’s coming at a high price in terms of other effects.
Because the medicine is a central nervous system depressant it can cause breathing issues. Not only do I now snore, but the snoring is LOUD; I have both earwitness testimony from Heath and my newly downloaded SnoreLab app. The app literally calls my snoring “epic.” I sound like an angry swarm of bees attacking an equally angry dragon.
There have even been a few times when I stopped breathing. The medicine I take has been shown to trigger sleep apnea, so now I have a sleep study scheduled in mid-May to see how dangerous a problem I have.
I’m also back to waking up drenched in sweat every night. I had a brief reprieve when I made the switch from Xywav (the newer formula of the medicine) to Xyrem (the older formula). I had to switch because the Xywav includes an artificial sweetener as an added ingredient and I was having all kinds of GI issues as a result. I then had a few wonderful nights of absolutely no sweat. It felt glorious to wake up warm and dry! Now I wake up feeling cold, clammy, and uncomfortable. Sometimes I even have to change my shirt in the middle of the night when I take my second dose because I’m soaked with sweat.
These effects are not what I signed up for to treat narcolepsy. All I want is a good night’s sleep. And then we had to throw out a perfectly good hour this morning. I was a shaky, anxious mess this morning.
Here’s what’s keeping me going:
Thank goodness for this little guy. I’ve had the privilege of taking care of Fergus since Tuesday. We sit on the couch together for hours. He watches out the window; I read a book. He chases his ball and I laugh. These moments are pure joy. How lucky I am to be with Fergus. He reminds me that there are still good things in life. I know because he’s one of them.
So is Heath. He’s been super supportive. He knows the snoring and the challenges with taking Xyrem aren’t my fault. Still. I love Heath more than any other person in this world. I hate that my quest for good sleep is negatively affecting his.
Thankfully, Heath has travel plans taking him to Illinois in about a week and a half. He’ll be gone over a month. Even though I’ll miss him terribly, there’s relief in knowing that I won’t be affecting his sleep.
I don’t know if I’m going to be able to continue taking this medicine. I feel terror and relief at the thought. There has got to be a better way. I just wish I knew what it was.
In October 2021, the Norfolk Land Trust put out a call to local photographers asking them to contribute to a January and February 2022 exhibit of their trails. Now, I am not a photographer; however, I do take a lot of photos.
A lot of my photos are of Annie in the Barbour Woods, which happens to be a Norfolk Land Trust Trail. Sometimes, I even take photos of the Barbour Woods without Annie in them. She’s very fast and quite curious so she’ll zoom ahead to get in some good sniffs or bury her ball to dig it up.
Meanwhile, I walk to catch up with her and marvel at the natural splendor around me.
The most marvelous of those places (in my opinion) is the Swamp Trail. During the spring and fall, vernal pools pop up and the beauty of the trail takes on a fantastical quality. I have probably taken close to 1000 photos of the Swamp Trail in the last 2-3 years. One of them was bound to be good.
So I offered my photo for the exhibit.
Imagine my delight when my photo sold for $75.00!
To know that someone saw my photo and saw value in it is validating in surprising ways. I love those woods and I love being there with Annie. And I just happened to be lucky enough to be there at the right time with my smartphone to capture the way the light danced between the trees and water. I remember that day and how I felt awe and wonder at the way the woods looked. The moment felt like magic; like a wonderful gift that Annie, the woods, and I will share forever.
I took that photo and somebody saw something in it enough to pay $75.00. Yeah, that feels good.
Here’s the best part: I know the person who bought the photo. Norfolk has an abundance of good people, and this person and their spouse are two of them. I consider both my friends.
When my friend handed me an envelope today with the check, I shook my head. I wanted them to have the photo just because. My gift to them because when we eventually move, I will miss them dearly and I will miss their in-person friendship. It makes me so happy to know that photo has a home with them.
That feeling is worth way more than $75.00!
I also contributed a photo of Annie and Dodger running on the Carriage Trail.
Because of course I did. Raise your hand if you’re not surprised.
the light streaming through the trees in the Barbour Woods;
Okay, I know this one is a little weird. But lately my body and mind have been craving functional forms of fitness and shoveling snow will give me that fix every single time.
I’ve also been thoroughly enjoying walking Annie through the snow-covered woods for the same reason. It’s such a great, blood-pumping, muscle-engaging workout to walk through the ankle-deep snow.
And last, but not least, these mashed potatoes:
I made a low fodmap vegetable stock recipe the other day. You throw a bunch of vegetables like leeks, the green parts of scallions, carrots, parsnips, parsley, and potatoes in a big pot with water and let it simmer for an hour. Then the recipe says to strain the liquid and discard the vegetables. Heath questioned the part about discarding the vegetables. I told him, “that’s what the recipe says.”
Yet, when the time came to actually discard them I looked at the wonderfully soft potatoes and thought, surely I should mash these instead of throw them out. Which is exactly what I did. And, oh, my, potatoes! They are the most delicious mashed potatoes I’ve ever eaten, a sentiment also shared by Heath.
So that’s where I am these days. My sleep is improved enough that I find mashed potatoes marvelous. Life is good.
This winter has been nothing short of wonky for Norfolk. December ended with warmer temperatures than usual, a lot of rain, and barely a dusting of snow. January also started off the same way. The second week of January changed everything – a few inches of snow and some chilly temperatures!
Just how chilly? On Tuesday, January 11th the temperature was -8°F with the wind chill. That day also happened to be one of my scheduled walks with Annie. I asked Annie’s mom how long she thought Annie could be out in the cold. Annie’s mom said she was more worried about me.
Pish posh! I replied (though not quite in those words). I believe that because my formative years were spent on an ice-skating rink, my blood carries a small percentage of ice in it.
I was not at all worried about myself being in the chilly temperatures, especially when I wear the proper attire.
In the case of Tuesday’s temperatures, appropriate wear meant hat, gator, gloves, hand warmers, fleece-lined pants, LL Bean socks, Xero winter boots, and my Columbia Omni Heat coat that is filthy dirty but I remain steadfastly committed to because I only paid 75 cents for it while volunteering in Churchill, Manitoba.
Annie and I set off with determination to complete our full loop of the Swamp Trail in the Barbour Woods. With blue skies that stretched for miles and a glorious sun for company, I felt confident we could do it.
And I was right!
By the end of our walk, my brain was awash in all the feel-good neurotransmitters – serotonin, dopamine, oxytocin, and endorphins. When I returned Annie home, I reported that our walk was “the most invigorating thing I’ve done all year.”
Since the year was only 11 days old, I’m not sure I impressed anyone.
But I did come up with the idea that this walk with Annie will be the benchmark for my experiences in 2022. Anything notable that happens, I will compare it to how I felt on that cold winter’s day with Annie in the woods. By the end of 2022, I’ll have a list of my best moments.
A few weeks ago, I led a TED Talks discussion group using Candy Chang’s talk, Before I die, I want to…. You can watch the TED Talk here.
Two of my discussion questions were:
How would you fill in the blank — Before I die I want to __________?
How would your answer change if you knew you only had one year left to live? What about one week? One day?
A lively discussion ensued. One gem of wisdom shared by a participant was that a year was a luxurious amount of time. How grand to know you have a full year ahead of you!
Juxtapose that idea with the basic premise of Oliver Burkeman’s Four Thousand Weeks: Time Management for Mortals, whereby the average human lifespan is only four thousand weeks. Four thousand does not seem nearly enough.
Since the reality is we really don’t know how much time we have left, I take time every year to reflect on my own death. This practice helps me ensure that no matter what happens, I know what’s important to me, which in turn, helps me make decisions in both the short- and long-term for living my best life. Previous death meditations inspired me to quit my tenured position as an associate professor of psychology, to volunteer for seven weeks at a science center in sub-Arctic Canada so I could see polar bears in the wild, and to recognize that my perfect day includes time for rest, self-care, being with loved ones (and a dog), some play, and some productivity.
This year, I reflected on my death while at a winter solstice sunset meditation program at Naumkeag. Naumkeag is a beautiful house in Stockbridge, Massachusetts, set on a rolling hill with the Berkshire Mountains as its backdrop.
Picture taken on Autumn Equinox in 2021.
Picture taken on Autumn Equinox in 2021.
Having been there before, I knew Naumkeag is a magical place. What made the night even more magical is the house and grounds glowed with thousands of colorful lights as part of their winter lights festival. I could not have asked for a more perfect place to reflect on my past year and find inspiration for living my best life in 2022.
2021 was a hard year for me. The grief of losing family, friends, and dogs in 2020 carried over, as did the uncertainty of the pandemic. Add to that a terrorist attack on the US capital in January, a constantly mutating virus because not enough people are vaccinated, and a debilitating sleep disorder that has been getting progressively worse for years, which, in my opinion was so stressful it reactivated a shingles infection in my body in August, and I’ve got a year that really sucked at times.
And yet, because I’ve taken time in the past to consider my time and mortality, I also experienced a pretty wonderful 2021. I have never been more in love with Heath than I am today.
He is an amazing teammate, best friend, and husband. A lot of times when I panic that I’m 44 and if I live to the same age as my dad then I only have 30 years left, the panic is because I feel like that is not enough time to love Heath. Since there is literally NOTHING I can do about my eventual death, my way forward is clear: just love Heath to the best of my ability each and every day.
Last year, I also had a dog fall asleep on my head! Best. Day. Ever.
In those moments, as Fergus snoozed away, I thought I might explode with joy. I also thought I might never be able to move again, because I couldn’t bear to wake the little guy up.
Knowing how dogs have a special place in my heart, I mostly kept up with my twice weekly walks with Annie. Even in my darkest days of sleep and health challenges, being with Annie in the woods was a wonderful tonic which helped me keep going.
2021 is also the year that I learned how to write a novel on my phone. In my work at the Norfolk Library, I led a program on habit formation using James Clear’s Atomic Habits book. From his insights and practices, I finally let go of wanting to be a person with a habit of jumping out of the bed first thing in the morning. That kind of habit is impossible for me when I feel severely sleep deprived and depressed due to narcolepsy. Instead I used the techniques and information to develop a habit of writing on my phone, which makes a lot of sense considering how often I use my phone and how my phone is almost always within arm’s reach. Six months and over 37,000 words later, I now have the first draft of a middle grade novel that is just waiting for revision.
I also spent a lot of time querying agents in 2021. I received several requests for full manuscripts or more work. Although I was not offered representation, I did receive personalized rejections, some with encouragement to keep going. It’s not what I hoped for, but I’m certainly not giving up now.
In reflecting on 2021, one area of my life other than sleep also seemed out of balance: my work life. When I quit teaching in 2016, I never wanted to work full-time again. The hours and stress of working full-time did not seem possible while also trying to prioritize my sleep health.
In the beginning of 2020, I worked 12 hours at the Norfolk library and 10 hours for the Congregational Church. That combination seemed perfect for my personal and professional goals. By the end of 2020, I was working 35 hours a week — 25 for the library and 10 for the church. I needed to work 25 hours at the library so that after 1 year at those hours, I would be eligible for health insurance. During 2020, our market place health insurance monthly premium went from $60 a month with state assistance to $1,069 a month with no assistance.
Perhaps if I didn’t experience downward-spiraling narcolepsy symptoms in 2021, I may have been able to sustain a 35 hour a week work schedule. Unfortunately, my sleep health was so poor in 2021 that I knew I couldn’t continue working this way. I made the difficult decision to resign from my position at the church. I will still volunteer for various church initiatives, since they have such a wonderful presence in Norfolk and beyond. But I now have the discretion to say no when I am simply too tired.
Which brings me to 2022 — How do I want to live differently, if I knew 2022 would be my last year?
The answer to that question came almost immediately while I was at Naumkeag. On that cold dark Night, we were led through a rainbow tunnel of lights.
During that walk the words colorful creativity popped into my head. I knew the instant I heard myself say those words that my creativity is missing an important component. So much of my creativity goes to writing: I write for my job at the library; I write for the Norfolk Now monthly newspaper; I wrote for the church. I also write in my free time in hopes of being a traditionally published author someday.
What I don’t do is use my creativity simply for fun. I don’t create for play. I don’t create simply to create. There is always a purpose. That stops in 2022.
This year, my year of colorful creativity, I will prioritize using color in creative ways. I never have considered myself a visually artistic person. I think that’s an important point. I am choosing to spend some of my time on artistic endeavors that have no higher goal, other than to simply create something colorful.
I find this idea both exciting and terrifying. I feel excited because it’s something new and different. It’s terrifying for a few reasons. One, I still think of myself as a minimalist and I’ve already bought some art supplies which creates cognitive dissonance with my minimalistic values. So that’s something I’m reconciling as I go down my colorful creativity path. Two, I know how precious time is. It’s terrifying to give up some of my writing time or otherwise free time to play. I don’t have to worry about giving up time with Heath because we know have art dates every Monday.
We’ll see how it goes. I decided to get a head start on my year of colorful creativity and made before the official start of 2022.
I call it Polar Nights. Here’s to more colorful creativity in 2022!
The pandemic ends. Everyone who can gets vaccinated and everyone masks and socially distances until there’s no more virus transmission and not enough hosts for mutations.
That’s it. That’s the list.
I am so tired of this pandemic.
Traveling in Tennessee this past week made me realize this pandemic is never truly going away. Maybe 2 out 10 people wore masks, social distancing doesn’t exist, and the number of derogatory comments I heard about masks and vaccines broke my faith in humanity.
Heath helped build my faith back up somewhat with a well-timed and well-intentioned pep talk. But still. Those were some dark days. Some of that darkness still lingers.
Thankfully, I also currently have 24-7 access to one of the best antidotes to faith-in-humanity destruction:
Fergus is, of course, the best Christmas gift ever. This tree is at my mom’s house.
That’s right! Fergus is back with me for the next two weeks. Thank goodness. I’m sure my heart will be brimming with light, love, and licks in no time.
Merry Christmas to those who celebrate! To everyone else, warm winter wishes!!
I’m glad it’s Thanksgiving this week, because it gives me a ready-made topic to write about: Top 10 Things I’m Grateful for This Year.
My husband, Heath. This year has been another challenging one, particularly with sleep issues. Heath is a constant source of unconditional love and support. The last time I struggled this much with my sleep, I was single. I eventually improved, so I know I have it in me to stay the course with my health as a single person. But I’m incredibly grateful I don’t have to.
DOGS! Speaking of unconditional love and support, dogs are also up there at the top of my list. Dogs bring me such joy! I can’t imagine my life without them. This point leads me to …
The people who let me love their dogs. This will be my first full year since 2013 that I did not live with one or more dogs. It’s been an adjustment to say the least, and I still find myself tearing up every now and again when I think of my furry friends I’ve lost along the way. So an extra special thank you to those people who ask me to take care of their dogs and love them like they’re my own.
My mom. She is one of the most generous people I know. The only way my mom could get even better is if she got a dog.
My best friend, Arlene. I met Arlene while on sabbatical in Chapel Hill, NC, in 2014. Arlene is almost 40 years older than me, and that doesn’t matter in the slightest. We understand each other, and every Thursday I call her. Sometimes we don’t chat, and I just leave a message. But we always know to expect a phone call on Thursdays at 11:30am.
My BFF Michelle. Michelle and I have been friends for maybe 17 years now. We can’t really nail down the date of when we went from being grad school acquaintances to good friends. The pandemic, however, changed everything. We experienced a Frien-essance (the friend version of a Renaissance) this year through Zoom and that’s one of my silver linings of the pandemic. Also shoutout to Beth, who often joins us on our Zooms. I’m grateful my friendship with her has gotten deeper this year, too.
My TPEP friends. These are the friends I made when working for the Tobacco, Prevention, and Evaluation Program way back in the mid 00s when I worked in the Department of Family Medicine, UNC School of Medicine as a research assistant. I doubt I will ever have such a dynamic and fun group of friends at work. We stay in touch a few times a year and I love them all SO MUCH!
My imagination and creativity. These are my two greatest natural gifts. Because of my imagination and creativity, I am never at a loss when writing a story. In fact, I often have too many stories to write, and then have to choose which ones to write and which ones to let go. As a first world problem, I’ll take it!
My mentors. There are some people in this world, such as Dr. Al Forsyth and his wife Peggy, and Dr. Adam O. Goldstein, who believe in me no matter. They’ve each contributed their own way to the person I am today.
My improving sleep. Friends, I am cautiously optimistic in telling you that my narcolepsy medicine is working. I am no longer waking up every morning experiencing post-traumatic stress from my dreams. I no longer need a nap at 8:30am and again at 4:00pm. I am not heading straight to the couch after I wake up. I feel so different these mornings as of late, that sometimes I don’t even know what to do with myself.
As I was writing this list, I realized that Top 10 is too limiting. I immediately wanted to make it a Top 20, then Top 50. For brevity’s sake, I’ll stop here. Kinda. Because now I’m going to give a few honorable mentions: My niece, who is brilliant and creative, my writing group, who is AWESOME, the Norfolk Library, who provides AMAZING health insurance even though I only work part-time, my productivity club, where we provide unconditional support to each other, Ruth, who reads my blog regularly and is one of the nicest people you’ll ever meet, Dottie, who gives the best hugs in Norfolk, and Jeannine and Jeff, who continue to make me laugh.
There are so many more people and things I could list. I’m really going to stop now. At least for now.
I’m on day two of a treatment for narcolepsy. As I wait and see how much the medicine helps, I continue to celebrate small wins. Figuring out how to create a video of Annie on our walk last week with a particular song playing in the background is top of my list for small wins that equal REALLY BIG FEELINGS OF ACHIEVEMENT.
I’ve noticed that lately I’ve been a glass half empty kind of person. The first night I tried this medicine, which I took before from 2008-2015, I had the following thoughts: what if I die? What if I stop breathing? What if it makes me lose my mind? What if it doesn’t work. I worked myself into such a state of anxiety, that I decided I wouldn’t be able to fall asleep without wearing my ApolloNeuro Touch Therapy Device.
From their website:
Apollo Neuro is scientifically sound, wearable touch therapy that you wear on your ankle or wrist. Apollo’s silent, soothing vibrations speak to your nervous system, telling you that you’re safe and in control. Developed by neuroscientists and physicians, it’s a safe, non-invasive stress relief tool for adults and children, without drugs or side effects.
I had invested in the Apollo Neuro to help my sleep, which I can’t say that it did. But I have found it to be soothing in certain situations. So I slapped it onto my wrist and curled into the fetal position.
I woke up a few minutes later thinking I was having a panic attack because my whole body was shaking.
Except it wasn’t really. It was just the Apollo Neuro. Unfortunately, the way I contorted myself resulted in the device vibrating directly against my chest.
The next night went much better, and I certainly had less dramatic thoughts. But these other thoughts never once crossed my mind: What if this the best thing to happen to me? What if my sleep completely improves? What if everything starts getting better?
I suppose the good news is that now I’ve realized I’ve been glass half-emptying it, I can switch my thought process. Part of me would like to understand why I became a glass half-empty kind of person and part of me doesn’t care about the why.
Then there’s the other part of me that says, isn’t it more important that the glass is refillable in the first place?
I’ll save these questions for another day. In the meantime, here’s to the best night of my life! Hopefully.
I don’t want to alarm anyone in Norfolk, but there’s some sort of creature hanging out on the Swamp Trail in the Barbour Woods.
This creature enjoys splashing and swimming. Every so often, she jumps out of the swamp and shakes off her coat all over innocent bystanders.
If you’re lucky, maybe you’ll get to see her. Be forewarned: encounters with this creature result in moments of pure joy and lots of smiling. I mean, honestly! Just look at those ears!
It moments like these that I hold onto because the narcolepsy continues. Of course I’m still sleepy.
Today, however, I am also hopeful.
When I spoke with my sleep doctor last week, we agreed to try a medicine that worked wonders for me for seven years. Overtime, its effectiveness diminished and the side effects became more pronounced. I’m hoping because I haven’t taken this medicine since 2015 that my body and brain will have completely reset itself.
Now, the challenge is getting the medicine. It’s only available at one pharmacy in the country and there’s a lot of paperwork and verification that needs to happen first. So far, I’ve had to email the pharmaceutical company a copy of my marriage certificate and license since the last time I took the medicine I had a different name ,and then on Friday I received notice I have to fill out a new enrollment application.
So, I wait.
In the meantime, Norfolk is on the brink of being a cornucopia of fall foliage. Now’s the time to get outside and enjoy it. Even better, bring a dog!